Support group offers chance to talk to fellow Fibromyalgia sufferers

Christine Johnson, from Stamford, who is starting a support group for people with Fibromyalgia. Christine is pictured with her daughter Hannah, who also suffers from the condition.'Photo: MSMP250313-008ow

Christine Johnson, from Stamford, who is starting a support group for people with Fibromyalgia. Christine is pictured with her daughter Hannah, who also suffers from the condition.'Photo: MSMP250313-008ow

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A mother and daughter who suffer from a debilitating condition are opening a support group for fellow sufferers in the area on Tuesday.

Christine Johnson, 48, of Banks Crescent, Stamford, is starting a support group for people with Fibromyalgia, a condition she suffers with, which is a long-term condition which causes pain all over the body and extreme tiredness.

Christine’s daughter, Hannah, 19, a student at New College Stamford has also been recently diagnosed with the condition.

Christine said: “One of the reasons I decided to start a support group is because people don’t know about the condition.

“It feels like I have been 10 rounds with Mike Tyson all the time.”

“It is hard condition for people to understand because from the outside looking in you look absolutely fine but on the inside you are in agony.”

Christine said getting fibromyalgia has really changed her life.”

She said: “It really limits what you can do and you have to plan everything.

“I was pretty much on the go all the time and it is like someone just pressed pause on your life.”

As well as causing widespread pain people with fibromyalgia may also have difficulty sleeping, headaches, irritable bowel syndrome and muscle stiffness.

It is believed about one in 20 people may suffer from the condition.

There is currently no cure for fibromyalgia although symptoms can vary in severity. However, there are a number of treatments that may ease symptoms and including medicines, talking therapies and lifestyle changes – such as relaxation and exercise.

Christine said the other reason she wants to start the group is because of her daughter’s diagnosis.

She said “I wouldn’t wish this on my worst enemy let alone my daughter.

“When I heard I was thinking in my head please God no. She was just about to go out into the world for herself and now she might not be able to.”

The first meeting of the support group will be at The Dolphin Inn, in East Street, Stamford starting at 6.30pm on Tuesday.*

Christine said: “Just to talk to someone who has got it can make you feel normal again which is a big deal so come along.

For more about the meeting call 0844 8872604.

*The newspaper incorrectly advertised the meeting as being on Sunday rather than Tuesday, April 2. We apologise for any inconvenience caused.