Zoe Crowson, who set up a research fund for her little girl who was born with a rare genetic skin condition, is hosting a charity dinner and auction to help raise funds for the charity.
For five years Zoe, 37, from Stamford, has devoted her time to looking after her daughter Phoebe, aged five, who was born with the rare genetic skin condition Recessive Dystrophic Epidermolysis Bullosa or EB.
It’s really quite overwhelming to know that so many people want to help support Phoebe.Zoe Crowson
Last year Zoe decided to start her own charity, The Phoebe Research Fund to raise money for research into her daughter’s condition.
Phoebe was diagnosed with a mild condition of EB soon after she was born, where the skin blisters and breaks away at the slightest touch.
She has now been classed as ‘intermediate’, a more serious stage of EB because of blisters on her internal lining.
Zoe is hoping to raise lots of money for Phoebe by hosting a charity dinner and auction at the William Cecil Hotel on September 3, from 7.30pm till 11pm.
The charity is inviting all local businesses to donate prizes to be auctioned at this charitable event. She said: “We are only in the early stages of planning this event, but we’ve already had lots of generous businesses come forward that want to help us.
“It’s really quite overwhelming to know that so many people want to help support Phoebe.”
A number of local businesses have already approached Zoe to offer their support, including Ragdale Hall, The George Hotel, Sacrewell Farm, Nene Valley Railway, Peterborough United Football Club and Love Stamford who have chosen The Phoebe Research Fund as its local charity of the year.
All of the funds raised on the night will go towards finding a cure for EB, so Zoe needs all the help she can get to help make a difference.
Billy Harbison from HotSpring World in Peterborough has already donated a hot tub to be auctioned off as part of the evening.
Zoe said: “The support is uplifting for both myself and Phoebe. She has had three lots of surgery over the last year, which is a lot for anyone to go through, but she stay’s strong and doesn’t let her condition stop her from living life to the full.”
Zoe is also looking for anyone that can provide entertainment on the night, including local bands and singers.
If you are interested in helping out and would like to get in contact with Zoe please e-mail firstname.lastname@example.org or you can get in touch with Zoe on 07718071645.
Tickets for the event can be purchased from Zoe at a cost of £50 each, which includes a welcome drink, three course meal and entertainment.
For more information about the fund please visit the website at www.phoeberesearch.co.uk or visit the fund’s Twitter page @phoeberesearch.