Six months and two days after baby Wyatt was born on April 18, he has finally come home.
For parents Brian Makwana and Sam Orner, whose son was born with the rare congenital diaphragmatic hernia, or CDH, it has been a very long wait.
Mum Sam said: “We brought his home last weekend for a trial and he was really good.
“And on Monday we brought him home for good.
“It feels amazing to have him home and to finally be a family.
“Brian is just as ecstatic as I am.”
Once Wyatt has settled in his new surroundings, the couple plan a welcome home party for their baby, who has had a fight on his hands.
Wyatt was born with just five per cent of his diaphragm intact. He had to have an artificial patch stitched to it.
His treatments have including extracorporeal membrane oxygenation or ECMO to bypass his heart and lungs and allow the organs time to recover and a tracheostomy to help him breathe.
The latest treatment was a complicated procedure known as Nissen’s Fundoplication, to twist his stomach to stop him refluxing, at Queen’s Medical Centre, Nottingham.
Congenital diaphragmatic hernia occurs in one in every 2,500 babies.
Wyatt, who still has to be fed through a tube in his stomach and is on a ventilator, will need to make regular visits to the hospital.
In a year, he will have another test after which his tracheostomy tube will be removed to allow him to breathe on his own.
Sam and Brian, of Pinfold Road, Castle Bytham, have been raising funds for the charity CDH UK which has provided advice and support.
On Saturday, staff at the Railway Children’s Day Nursery, in Creeton, where Sam works, hosted a coffee morning. It raised about £200.
Sam said: “The staff baked cakes and sold it with teas and coffees. People have been very supportive.
“We’d like to thank everyone for their support.”
Their next fundraising effort is a Rat Race Dirty Weekend when Brian and a team of 10 friends will run the 20-mile assault course at Burghley House in May 2015. To sponsor Brian go to www.mycharitypage.com/Wyatt2014CDH