Stamford salon shows support for The Phoebe Research Fund

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A beauty salon has made a donation to a newly-created charity to mark its third birthday.

Essence of Beauty in St Mary’s Street, Stamford, designated three special pampering days for customers and donated the proceeds to The Phoebe Research Fund.

Zoe Crowson set up the charity to help find a cure for her daughter Phoebe’s rare skin disease epidermolysis bullosa.

There are only around 1,000 sufferers of the disease in the UK and symptoms include blistering and skin shearing at the slightest touch.

Sufferers are nicknamed the ‘butterfly children’ as their skin can be as delicate as a butterfly wing and means that everyday tasks can be challenging and painful.

Phoebe, five, has undergone three operations to her throat within 10 months and will have to undergo frequent surgery to allow her to eat without choking.

Zoe said she was grateful to Loryn and Tracy Chambers from Essence of Beauty for coming up for the idea and for raising £300.

Zoe has previously raised money for charities that support sufferers and their families but only recently started her own charity with a view to finding a cure for the disease.

To find out more about how to support The Phoebe Research Fund e-mail zoe at or visit