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Mother of Bourne teenager who died from dilated cardiomyopathy set up display in The Wellhead for NHS Organ Donation campaign




The mother of a teenager who died from a heart condition has praised the community for supporting a project encouraging organ donation.

Maddy Orford from Bourne was diagnosed with dilated cardiomyopathy in November 2016. She died when she was just 18 in August 2017, two months before her 19th birthday.

The Bourne Grammar pupil received a donor heart two months after being listed on the heart transplant register but sadly didn’t survive.

The Wall of Hope at the Wellhead in Bourne in memory of Maddy Orford
The Wall of Hope at the Wellhead in Bourne in memory of Maddy Orford

To mark the NHS Organ Donation campaign and encourage a more open discussion between family and friends, Maddy's mum, Barbara Spiller, set up a Wall of Hope in the Wellhead, Bourne last week.

While Barbara had appealed to the community to knit or crochet hearts, she was shocked by the number of them donated.

"I'm really grateful to the local community for making them," she said.

The Wall of Hope at the Wellhead in Bourne in memory of Maddy Orford
The Wall of Hope at the Wellhead in Bourne in memory of Maddy Orford

"They've been made so beautifully."

Barbara dedicated the project, which ran until Sunday last week, to Maddy as well as raising awareness of the NHS Organ Donation campaign.

"It's been getting a very positive response.

"I've had people stopping me in the street saying how lovely it is," she said.

The Wall of Hope at the Wellhead in Bourne in memory of Maddy Orford
The Wall of Hope at the Wellhead in Bourne in memory of Maddy Orford

"People have been adding more hearts so it has grown since I put it together on Monday [last week].

"It has been attracting attention, which will hopefully get people talking about organ donation with their family and friends."

Research has shown that less than half of adults in England have had the conversation about organ donation with their loved ones, and although the system has changed to opt out, families will still be involved.

"Think about it and discuss it. Don't wait for it to be something in life which you need to decide in the moment," said Barbara.



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